By David Nagel, M.D.
“Those are rare who fall without becoming
degraded; there is a point, moreover, at which the unfortunate and the infamous
are associated and confounded in a single word, a fatal word, Les Misérables.”
—Victor
Hugo, Les Misérables, Vol III, Book
VIII, Chapter V
Jean Valjean still ranks as one of the great
characters of literature. As the protagonist of Victor Hugo’s Les Miserables, Valjean finds a way to
triumph over the evil of his fellow man — and in so doing he becomes a true
hero, one who takes the gifts he has been born with, develops them, and then
uses them to help all those around him better the world.
Idealistic French literature? Maybe. But there’s
nothing completely abstract about this story; it happens every day in our
country, just in a different form. In
1862 Hugo wrote: “So long as there shall
exist, by reason of law and custom, a social condemnation which, in the midst
of civilization, artificially creates a hell on earth…so long as ignorance and
misery remain on earth, there should be a need for books such as this.”
Are we any different? I love my country, but we
are not without sin. We lament our past
injustices to Native Americans, African Americans, women, homosexuals, Jews,
and others. We seek to fix the sins of
the past, but there are others still who remain persecuted — and our social
policies of the last hundred years have made an unnecessary living hell for
both those who experience chronic pain and those who suffer from addiction. Currently, 35-40 million Americans suffer
from what has been referred to as “high impact” chronic pain. Two and a half million Americans suffer from
some form of “opioid abuse disorder.” For most of the past century they have all been treated like criminals,
imprisoned by an ignorant system lacking mercy and falling decidedly short of
justice. The social policies designed to help those addicted only harm those in
pain, and what is needed is a change in perception — a cultural transformation,
even — to de-stigmatize the stigmatized.
State and federal authorities’ stance towards
opioid use and abuse has harmed many pain patients. I see the results every day
in my office. The reality is that our
options for treating pain are limited, and opioids are an important tool in
this battle. So, the question needs to
be posed to these authorities: if you are limiting access to opioids, what
steps are you willing to take to help develop other options for care? This is not a new question, and perhaps it
will receive greater emphasis as a result of the opioid crisis. It has been my observation that in colloquial
terms, pain management and opioid prescription are too often viewed
inter-changeably. It is also alarming
that the needs of treating and preventing opioid abuse supersedes that of those
who suffer from chronic pain, even though the ratio of those who suffer from
high impact chronic pain to those who abuse prescription and non-prescription
opioids approaches 20:1.
But hope is on the horizon.
The National Pain Strategy is an extraordinary
document that seeks to correct these problems. It acknowledges the issue of opioid abuse, points out the deficiencies
in our ability to care for those who suffer, and offers a six point strategy
for remedying these deficiencies by addressing: 1) population research, 2)
prevention and care of chronic pain, 3) disparities, 4) service delivery and
payment, 5) professional education and training, and 6) public education and
communication.
What is also exciting is that for the first time
in my career, patient advocate groups are standing up for their rights. The Chronic Pain Advocacy Task Force has
outlined four core beliefs which are being accepted by other groups including
the National Pain Strategy. Moreover, the creation of state policies for
medical cannabis is a direct challenge to failed federal drug guidelines. Cannabis and cannabinoids have great
potential as therapeutic agents for pain, and at least 15 percent of pain
sufferers risk government reprisal by illegally obtaining them for
self-medication.
Much is happening — finally — but much still needs to change. Pain patients are treated as pariahs by
doctors, who often refuse to care for them. They are treated like criminals in a court system that views them as
guilty until proven innocent. They are
discriminated against in a workplace that sees them as a potential risk, or
even just an extra cost. They are the
targets of unsavory snake oil salesmen both in medical and non-medical
settings. The list goes on.
In my book Needless
Suffering: How Society Fails Those with Chronic Pain, I outline sixteen
social institutions and how the behavior of each adversely affects the lives of
those who suffer from chronic pain. More
importantly, I offer solutions for these pervasive social and medical problems. My goal is to broaden the social discussion
on chronic pain beyond just opioids and return a sense of dignity to those who
suffer. As both a doctor and an author,
I would like to see an end to the legion of Valjeans who suffer needlessly as a
result of myopic policies. In doing so,
I hope, like Valjean’s bishop savior, to provide mercy to the needy and a sense
of hope to the hopeless.
I welcome you to join this journey.
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